UK Biobank, consultations - 2000-2003 : Différence entre versions
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| − | + | ====Contexte==== | |
| − | ===Contexte=== | ||
*Les documents parlementaires: | *Les documents parlementaires: | ||
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*[http://www.publications.parliament.uk/pa/cm200102/cmhansrd/vo020703/debtext/20703-43.htm#20703-43_head2 Ian Gibson, chairman of the Science and Technology Committee, sur les enjeux pour le système de santé public, 3 juillet 2002] | *[http://www.publications.parliament.uk/pa/cm200102/cmhansrd/vo020703/debtext/20703-43.htm#20703-43_head2 Ian Gibson, chairman of the Science and Technology Committee, sur les enjeux pour le système de santé public, 3 juillet 2002] | ||
| − | ===Processus=== | + | ====Processus==== |
*[http://www.genewatch.org/article.shtml?als%5Bcid%5D=507674&als%5Bitemid%5D=537155 Genewatch, UK Biobank Timeline, 1999-2006.] | *[http://www.genewatch.org/article.shtml?als%5Bcid%5D=507674&als%5Bitemid%5D=537155 Genewatch, UK Biobank Timeline, 1999-2006.] | ||
*[http://www.ukbiobank.ac.uk/ethics/consult.php UK Biobank, documents issus des consultations, 2000-2003] | *[http://www.ukbiobank.ac.uk/ethics/consult.php UK Biobank, documents issus des consultations, 2000-2003] | ||
| + | ====Articles critiques==== | ||
| + | * Barbour, Virginia, 2003. [http://www.lancet.com/journals/lancet/article/PIIS0140-6736(03)13377-6/fulltext "UK Biobank: a project in search of a protocol?"] ''The Lancet'' 361: 1734-1738. | ||
| + | *Hoeyer, Klaus L. and Richard Tutton, 2005. [http://www.informaworld.com/smpp/content~content=a743758789~db=all~order=page "'Ethics was here': Studying the language-games of ethics in the case of UK Biobank"]. ''Critical Public Health'' 15 (4): 385-397. | ||
| + | *Petersen, Alan, 2007. [http://www.hss.ed.ac.uk/genomics/documents/APGSPVol3No12007.pdf "'Biobanks engagements: engendering trust or engineerinf consent?"] ''Genomics, Society and Policy'' 3 (1): 31-43. | ||
| + | *Wallace, Helen M., 2005. [http://www.informaworld.com/smpp/content~content=a743758789~db=all~order=page "The development of UK Biobank: excluding dcientific controversy from ethical debate"] ''Critical Public Health'' 15(4): 323-333. | ||
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| − | Revenir vers la section [http://ethiquedessciences.com/wiki/ | + | Revenir vers la section [http://ethiquedessciences.com/wiki/La_g%C3%A9nomique La participation par grands dossiers - La génomique] |
Version actuelle datée du 2 mars 2009 à 16:31
Contexte
- Les documents parlementaires:
House of Lords, Science and Technology Committee, Second Report, session 1999-2000: demande de débat public House of Commons, Science and Technology Committee, Third Report, session 2002-2003: insuffisance du débat
Processus
Articles critiques
- Barbour, Virginia, 2003. "UK Biobank: a project in search of a protocol?" The Lancet 361: 1734-1738.
- Hoeyer, Klaus L. and Richard Tutton, 2005. "'Ethics was here': Studying the language-games of ethics in the case of UK Biobank". Critical Public Health 15 (4): 385-397.
- Petersen, Alan, 2007. "'Biobanks engagements: engendering trust or engineerinf consent?" Genomics, Society and Policy 3 (1): 31-43.
- Wallace, Helen M., 2005. "The development of UK Biobank: excluding dcientific controversy from ethical debate" Critical Public Health 15(4): 323-333.
Revenir vers la section La participation par grands dossiers - La génomique
