UK Biobank, consultations - 2000-2003 : Différence entre versions
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*[http://www.ukbiobank.ac.uk/ethics/consult.php UK Biobank, documents issus des consultations, 2000-2003] | *[http://www.ukbiobank.ac.uk/ethics/consult.php UK Biobank, documents issus des consultations, 2000-2003] | ||
| − | ==== | + | ====Articles critiques==== |
* Barbour, Virginia, 2003. [http://www.lancet.com/journals/lancet/article/PIIS0140-6736(03)13377-6/fulltext "UK Biobank: a project in search of a protocol?"] ''The Lancet'' 361: 1734-1738. | * Barbour, Virginia, 2003. [http://www.lancet.com/journals/lancet/article/PIIS0140-6736(03)13377-6/fulltext "UK Biobank: a project in search of a protocol?"] ''The Lancet'' 361: 1734-1738. | ||
*Hoeyer, Klaus L. and Richard Tutton, 2005. [http://www.informaworld.com/smpp/content~content=a743758789~db=all~order=page "'Ethics was here': Studying the language-games of ethics in the case of UK Biobank"]. ''Critical Public Health'' 15 (4): 385-397. | *Hoeyer, Klaus L. and Richard Tutton, 2005. [http://www.informaworld.com/smpp/content~content=a743758789~db=all~order=page "'Ethics was here': Studying the language-games of ethics in the case of UK Biobank"]. ''Critical Public Health'' 15 (4): 385-397. | ||
Version du 2 mars 2009 à 16:29
Contexte
- Les documents parlementaires:
House of Lords, Science and Technology Committee, Second Report, session 1999-2000: demande de débat public House of Commons, Science and Technology Committee, Third Report, session 2002-2003: insuffisance du débat
Processus
Articles critiques
- Barbour, Virginia, 2003. "UK Biobank: a project in search of a protocol?" The Lancet 361: 1734-1738.
- Hoeyer, Klaus L. and Richard Tutton, 2005. "'Ethics was here': Studying the language-games of ethics in the case of UK Biobank". Critical Public Health 15 (4): 385-397.
- Petersen, Alan, 2007. "'Biobanks engagements: engendering trust or engineerinf consent?" Genomics, Society and Policy 3 (1): 31-43.
- Wallace, Helen M., 2005. "The development of UK Biobank: excluding dcientific controversy from ethical debate" Critical Public Health 15(4): 323-333.
Revenir vers la section La participation par grands dossiers - La génomique
