UK Biobank, consultations - 2000-2003

Contexte

• Les documents parlementaires:

House of Lords, Science and Technology Committee, Second Report, session 1999-2000: demande de débat public House of Commons, Science and Technology Committee, Third Report, session 2002-2003: insuffisance du débat

• Ian Gibson, chairman of the Science and Technology Committee, sur les enjeux pour le système de santé public, 3 juillet 2002

Processus

• Genewatch, UK Biobank Timeline, 1999-2006.
• UK Biobank, documents issus des consultations, 2000-2003

Articles critiques

• Barbour, Virginia, 2003. "UK Biobank: a project in search of a protocol?" The Lancet 361: 1734-1738.
• Hoeyer, Klaus L. and Richard Tutton, 2005. "'Ethics was here': Studying the language-games of ethics in the case of UK Biobank". Critical Public Health 15 (4): 385-397.
• Petersen, Alan, 2007. "'Biobanks engagements: engendering trust or engineerinf consent?" Genomics, Society and Policy 3 (1): 31-43.
• Wallace, Helen M., 2005. "The development of UK Biobank: excluding dcientific controversy from ethical debate" Critical Public Health 15(4): 323-333.

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